Life is not a bed of roses

Today I am in a typical young Women life's not fair mood!! I have thoughs days sometimes. I have a pressure sore at the most inconvenient time in my life when everything else us going good or at least ok this thing pops up. The worst part is the only thing a Dr. can tell me to me do is stay off of it(yeah like that's gonna happen....sheesh). What people don't get is even though I'm disabled I have a life and a full busy one at that, I don't just sit around or lay around doin nothin all day if I did I would start to loose interest in life and eventually give up on it. Ok I'm finishing this up a few weeks later, yeah weeks and the sore is worse. In an attempt to make me feel better a friend who works with severely disabled children told me to sit on a bean bag, at first I thought she meant a little bean bag like you play toss with but after I stopped laughing she said no a bean bag chair, sounds crazy but just might work! Well here we are a month in to this thing and nurses have been brought in and a surgeon seen as well as I've pretty much been put on bed rest and I've been told that it will take six months to get this thing healed and that I'm actually "Lucky" its not worse!!! So ya now I'm at that "my life is over" over reaction point that I think so many come to at a time like this. I have been told I'll be ok and life will resume to normal in a while but for now my perfectly normal life has come to a screeching Holt. I and my family both have been very irritated because on top of all. I go though with these things we now find out that my doctor has not even been aware that I have been trying to get meds for a week and just now got them. I am now having to get use to an air mattress on my bed and air cushion on my wheel chair (FUN). I Just wish this "thing" would heal so life could be normal again. well that's enough for one blog hope the next one is happier.

Its a mind thing!

I am doing Today's blog to really help people understand how I think. Here we go! when I am in my chair and my hands are to the side I am standing, When I'm in my chair and my hands are in my lap I'm sitting. When I'm with a group of people who are standing so am I and if they are sitting well then so am I. I have heard it said She just wheeled her chair here and there or whatever Under no circumstances have I ever "wheeled" in to a room or "Wheeled" up to anyone before, yeah to every one else that's what it looks like but I'm just walking or standing like anyone else but I do it differently. I'm in the Choir and this is where it gets fun, if you see me wiggling its just me tapping my foot to the beat of the music. If you see me lift my upper body up a little it is the same as you doing a calf lift. If you see me turn and lift my body in a circular motion is like stepping one leg over the other the putting them together!! This is the hardest blog Ive ever done cause I really have to think about what my motions are!! It just comes natural to me. "ITS A MIND THING"

My new chair is here.....FINALLY!!!!!!

Hey guys yeah you heard me right it is finally here and I love my new chair. If you have been keeping up with my blog you know that I ordered this chair in September and I am just now getting it. I love the color, orange Guess why, Any guesses? Give up? To match my Harley-Davidson theme of course.


I am so glad that I have a chair that is not falling apart. The brakes and tires work great and the belt is intact which sounds minor but to me is a big big deal . I am sitting up a little taller in this chair so that will take some getting use to and the handle bars are Higher so every one loves that it will be easier to push I just wonder how it will be to lift up steps and transfer to my grandmas high bed in i guess we shall see.

I'm in the choir Yall !!!

(Member of Voices of Praise where : "Its not about us its all about him")

Well folks I'm in my church choir and I love it!I joined about a month or so ago after over two years of not singing at all, you see I was in the choir at my former church and in school but when I graduated that all fell apart. I only have one complaint I am vocally so out of shape and often can feel it after a really strong song. (hallelujah any how)

Let me just tell you the men of the choir and church have really stepped up to the plate they just lift me up them stairs like its nothin of course as in everything my pastor is the master mind behind that operation and I am never at a loss for help I always know I have someone that will help me when I need it.

And the ladies in the choir are just the best, I always have three each Sunday ready to help me put my choir robe on when I get to the choir room/fellowship hall and at the end take it off, even on my weak days they are so patient and understanding.

Sometimes life with me can be tricky but they all are learning how to handle me.

I love my church family and God is really blessing and moving in our services and in our practices in a miraculous way.Praise God for his many blessings!!!!

As our pastor would say "be blessed now".

I Stand on my head and yes I have a bed!

Hey Peeps sorry it has taken me so long to post again.
Today I am talking about how I get dressed and how I sleep. I can't name the times I have been asked "Do you sleep in your chair?" My answer is NO I don't, I have a bed and blankets and a room that all of that is in. Below is a picture of me in my bed.


I also get asked how I get dressed and when I tell people i stand on my head their eyes bug out and I get the oh so funny " your kidding right?" or "No way" and I laugh and say "yep sure do". I have to be honest this idea came out of anger and frustration after camp counselors ( camp Easter Seals) tried to teach me how to get dressed by turning from side to side to pull my pants up, when I got home I tried that and said this is for the birds there's got to be a better way so i flopped over pulled my pants up and was done. So there's that story too, hope you enjoyed.



Well that's all for now I'll be back next week when I have more pictures taken!

finally my new chair is coming

Hi Guys I just got word today that my new Manuel chair will be here in about three weeks. I Have been waiting since September 17th ( that's when I ordered it). My old Manuel chair is literaly falling apart and I'm way over do for this one. This is a lesson well learned, when buying a wheelchair from these company's bug'em, bug'em and then call and bug'em again til you get what you want.

My new chair will be a bit narrower and the front will be different also it will be colored orange to match my motorcycle theme, I will talk more about that later.

On to other things, I'm loving this whole Blog experience. I just put the site on my e-mail and My myspace so that all of my friends can read it and learn a little more about me.

Its catch up time

Hey guys I'm back and I have so much to talk about. First off I just want to stress How important it is to have friends. I was reminded of this fact this past weekend.

I recently started going to a new church in October and I love it as I have said many times before. I was in a predicament. I wanted to go to church and my grandma was sick and she is the one I go with. It is just right down the road from her house and we just walk. I was rather bummed so when I called a friend from work that had been attending the church with me to see how she was doing that Saturday she volunteered to come to my house drive my big dodge van and took me to church, God bless her.

I'm so glad we went, the presence of God was so strong It was AWESOME!!!. I have to tell you my faith is what keeps me going and good friends and family that will pitch in and help me out. I have such a wonderful support team and that is so important. It is my goal to be as "normal" as possible and my friends and family are great for the most part about making me feel that way (sometimes there are slip ups). I can't Wait to see how this weekend goes.
See ya later.