My Healer rescued me

This year on Dec 29th and the early ours of Dec 30th I celebrated one year of being anxiety free. I have suffered with this debilitating disease in some way all of my life. In the last five years it had gotten really bad. Well that night was no different. I had been have little spurts all Christmas break. That night the mega attack hit!! I felt like I was going insane. I decided right then and there I had been through enough. A few years back our youth had done a drama titled "Set Me Free". Every time they would perform this drama I would think "Thats me!!". I had this drama going through my mind the night of my healing. I finally surrendered.....Within myself I screamed "Jesus rescue me!!!". At that moment I fell back on my bed and came too fully. I felt like something had come out of me and I have never been the same since that day.   

A God encounter like non-other

On Friday, November 2, 2012 I called in Sick to work. Shortly after that I wrote on FB "Laying my heavy head in Jesus lap rubbing his nail scared hand,He never flinches . A Few hours later I had an experience that was so dynamic....So awesome I cried the rest of the day talking about it and just thinking about it.

    I was laying there and all of a sudden I could feel a lap under my head! I recognized this lap though I had never felt it or seen it before. I was also holding a hand and rubbing this had again I recognized it though I again had never seen it or felt it before. I began too feel the hand more....IT WAS JESUS!!! I felt the nail print though much larger then I expected. I felt his long legs (maybe 6'4 ) under my head and hand. I felt his arm around my right shoulder as I was laying on my left side and he was sitting on my bed on my left. His hands were huge. I felt and saw his long white robe with long flowing sleeves. I layed there and basked in him and his love for me. It got to be too much.... I had to get closer...I wanted to sit in his lap so bad. I sat up a little and wrapped my arms around his waist. I rubbed him and clinched him sobbing "why? why did we do this to you?" Why did we hurt you so bad" I got no answer just love.

    I felt him all day I would sit up then down on and off all day never leaving my bed till now.

    I didn't want to leave him I didn't want to leave that place. I am a changed person I will never ever be the same. I want the world to encounter him Like I did that day.

My Summer!!

Well Here I am. My summer is coming to an end. I have less then a month left. I have had a great summer. The last couple of years have been full of sickness and I finally got a summer sickness free. I have been very busy with my church and of course when I'm not there I am sleeping in. I did get to ride the bike this year and boy was that fun. Half way home from the parade I told Paul that I enjoyed this year so much more then last and it was probably because I was sick last year. I wore my vest he gave me and was hoping he would wear his but he didn't.

Now its a few days later and I went for a Dr's appointment a few days ago and as always we go shopping and out to eat right after. Well I am so happy to say during that shopping trip I found and bought the Biker boots of my dreams!! I love them, I even wore them right out of the store!! I had wore the rest of my biker outfit that day but did not have the boots to match!! During this Dr's visit I stressed to the nurse the importance of being as normal as I can be in my situation. My Dr. also loved the get up and "talked bikes" with me which I thought was great.



Ok, on to other things. I got the call this week that I will be returning to Tussing Elementary in September. I love my job, I had started working there last year and got sick so I did not get to work there much. I look forward to a great year and to what God has in store for us!!

The Body is a crazy thing

Today's Blog is about the two conditions that I have and have been dealing with lately. I have been asked many Questions about Arnold Chiari and Hydrocephalus, So hang on tight cause here..we..gooooooo!!!!

Arnold Chiari is where your cerebral tonsils (tonsils in your brain which is also called the brain stem) is pulled tight in to your neck and can cause a lot of neurological issues, mine are tingling in hands, pain and locking up of the neck and the rare swallowing issue that Ive learn to overcome along with headaches like Ive never had before. Here is my favorite link to help you better understand this condition(pictures and all)http://http//www.wacma.com/



I also have What I believe to be Congenital Hydrocephalus which is Hydro(water) cephalus(on the brain) literally translated "water-head." I have had it from birth do to my disability (Spina Bifida) So I believe that makes it congenital there is also acquired which I believe is if you had and accident and that caused it!! I have more research to do on the differences, I have had a shunt for 23 years to drain the water off my brain and have only recently had it replaced. I now have what they call a programmable shunt which is a lot nicer in my opinion then the older VP shunt I had before. With the programmable shunt there is a little magnetic device that is put on the outside of the head to open the valves up no surgery required!! Here is a link to help you understand Hydrocephalushttp://http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm#151053125.
So Like I said "THE BODY IS A CRAZY THING"

God Is so good!!

"How great is our God? Sing with me, How great is our God"? This song has Been Going through my head since I have been home from the hospital. I am still over whelmed by how I have seen God move in the past few months. First of all I have the best family, friends and church in the world. I have The best pastor who stuck by me through this whole thing, He's really been Our rock and his family is da bomb, I'm not sure how I would have made it with out them. (he secretly wishes I'd stop saying that). I can't for get My Mom who rarely left my side and Family that came just to give her a break!!

I have so many cards that my two closet doors are covered in them. I have so many people praying for me and calling me and visiting me from church and my family. I even had two of my sisters in Christ that called and came over just to lay hands on me and pray for me. I have seen where my God had this all mapped out before I was ever even sent to the ER. I had in the first Hospital nurses that where Christians and such encouragement to me. These nurses spent hours at a time with me just talking, I found out that one was the same denomination as my family and Even know a friend of mine that I worked with.

Also I was told that I would have to have a Picc Line put in which is a really big IV and I was so nerves that one of thoughs nurses promised me she would come hold my had while it was being placed and sure enough she did, what a blessing that was to me. Even that IV is a blessing, Because of the meds I'm on I have to have blood drawn twice a week but with the line in they don't have to stick me, I'm a hard one to stick.

This now is April Months later and I am fully recovered and back at work and church. Oh how my God has amazed me. I still to this day have thoughs cards up too!! Even now as I go though other things I can say God is blessing me daily with people I don't even know coming my way to help me. I AM BLESSED, I AM BLESSED, EVERY DAY THAT I LIVE I AM BLESSED!!!!

Listen to your Body!!

Hi Guys I'm back, I have been very sick for the past almost year and that's why I've not blogged but I'm back with a vengeance. This Blog is about my adventure as a Disabled person with a Pressure sore and a warning to everyone disabled or not to listen to your body, I'm glad I did because it probably saved my life.

Ok I'll start from the beginning, I Had surgery in September,08 and had not felt the same till now. I had tiredness and just was not me but that was it so I just thought I was anemic so I went for blood work and found out I was not (so they said). I just kept getting worse and in June of "08" I got a pressure sore. I went the DR, and got meds for it and it healed up. Ok fast forward to June "09". I got the pressure sore again in the same spot and still was feeling really rotten with no reason as to why. This time I was told it was fine and was not given meds. I went though my summer faking it the best I could till the end of July. It got worse this time. I went to the DR, and was given meds but by this time it was too late, I spent most of the summer sick and in September 09 it hit me like a tone of bricks. I could barely make it to work or church, every move was a struggle. Then in Oct. 09, I was given the worst possible news, you could see bone. I went to my surgeon only to get another "Oh it looks great your fine. It was that night that my life was changed. I was admitted and told the infection was in the hip bone. I spent ten days in the Hospital, two really because I had to be transferred from one to the other to have surgery to have that bone removed. I am currently at home on IV meds....strong ones to get rid of the infection.

Morale of my story......Listen to your body and don't let people tell you there is nothing wrong with you when you know there is!!

Life is not a bed of roses

Today I am in a typical young Women life's not fair mood!! I have thoughs days sometimes. I have a pressure sore at the most inconvenient time in my life when everything else us going good or at least ok this thing pops up. The worst part is the only thing a Dr. can tell me to me do is stay off of it(yeah like that's gonna happen....sheesh). What people don't get is even though I'm disabled I have a life and a full busy one at that, I don't just sit around or lay around doin nothin all day if I did I would start to loose interest in life and eventually give up on it. Ok I'm finishing this up a few weeks later, yeah weeks and the sore is worse. In an attempt to make me feel better a friend who works with severely disabled children told me to sit on a bean bag, at first I thought she meant a little bean bag like you play toss with but after I stopped laughing she said no a bean bag chair, sounds crazy but just might work! Well here we are a month in to this thing and nurses have been brought in and a surgeon seen as well as I've pretty much been put on bed rest and I've been told that it will take six months to get this thing healed and that I'm actually "Lucky" its not worse!!! So ya now I'm at that "my life is over" over reaction point that I think so many come to at a time like this. I have been told I'll be ok and life will resume to normal in a while but for now my perfectly normal life has come to a screeching Holt. I and my family both have been very irritated because on top of all. I go though with these things we now find out that my doctor has not even been aware that I have been trying to get meds for a week and just now got them. I am now having to get use to an air mattress on my bed and air cushion on my wheel chair (FUN). I Just wish this "thing" would heal so life could be normal again. well that's enough for one blog hope the next one is happier.