If I hear one more able body person say "I know", "I understand why you feel that way" "I get it" I am going to SCREAM!!!!
No you don't understand my life or this disability!!! You Don't get what its like to be me day in and day out!!!!!
You don't know what its like to feel free as a bird one day and locked in chains the next.
You don't know what its like to have to depend on others for EVERYTHING!!!
You don't know what its like to have to say "I'll try to be there if I can get so'n so to bring me" or "I cant come to that because my body requires all day medical intervention twice a week just to function"...... the severity of which I hide. You don't know what its like to have your body humiliate you!
So no you don't get it....... but thats ok......you couldn't possibly understand it because........Well... YOU AREN'T ME!!!!
HOPEFULLY What you mean if anything is you want to understand what its like. You wish you could understand me better or even take this whole thing away from me if only for a day.
I have been VERY RAW tonight!! An open book. I hope this makes someone out there THINK!!
